Dean Steacy has been fighting for five years to get his local Rexall drugstore to adopt “talking prescription label”┬аtechnology.
The Gatineau, Que., man has been blind for 17 years, takes insulin and up to 10 pills daily for diabetes and related conditions.┬а
He sometimes has to rely on others to help him manage his medications. The lack of independence “kind of takes away part of your dignity,” he told Go Public.
And, because he can’t see his prescriptions, he’s always at risk of taking too much, too little, or even the wrong medications. An insulin mistake, Steacy says, can have grave consequences.
“If I take too much of that, or not enough of it, I can go into diabetic shock or hypoglycemia.”
He says it’s also a struggle to make sure he gets and can reorder the right medication.┬а
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That’s where ScripTalk comes in; a technology that uses a radio frequency chip attached to the bottom of a prescription bottle. It has the same information as a prescription label, including┬аdosage, instructions, warnings and the number of refills, which can be read aloud by a reader or smartphone.
It has been available in Canada since 2010.
Steacy┬аhas been lobbying Rexall to adopt the technology since 2017.┬а
Though he was repeatedly assured the chain was considering his request, Rexall┬аdidn’t make any progress for five┬аyears. By┬аJune,┬аRexall had┬аinformed ScripTalk┬аit would not be adopting its technology after all, which Steacy┬аheard about through his involvement in an advocacy group for people with sight loss.┬а
After Go Public got involved, Rexall changed its position, saying in a statement its handling of Steacy’s┬аrequest “fell short” of its standards and vowing to renew its efforts.┬а
“We are currently working with Mr. Steacy to implement a solution.┬аRexall is reviewing the use of this technology on a case by case basis,” the company said.┬а
Separately, in late August, the chain promised Steacy┬аthat his local Rexall┬атАФ on Laurier Avenue West in Ottawa тАФ would be accommodating his request for ScripTalk.
Twelve weeks later, he is┬аstill waiting. Rexall did not respond to further questions from Go Public about the delay.┬а
Disability rights expert and lawyer David Lepofsky is frustrated by the situation.┬а
“I am appalled, but not surprised that it takes the media to focus the spotlight before somebody decides that this practice needs to be fixed.”
Steacy’s fight has been waged elsewhere in Canada.┬а
In 2014, the┬аB.C. advocacy group Access for Sight Impaired Consumers (ASIC) filed a human rights complaint against Shoppers Drug Mart and Walmart.
The group accused the pharmacy chains of dispensing prescription medication in a non-accessible format, because they were using printed labels only.
Rob Sleath, the group’s chair, is a kidney transplant recipient and blind. The issue was personal for him; he was taking more than a dozen medications and was struggling to keep them all straight.
He headed ASIC’s┬аcomplaint, which settled in 2016 with a compromise.
Shoppers Drug Mart agreed to offer talking prescriptions via a “central fill” system which means, instead of the medications being prepared on demand at the local pharmacy, they are filled off site with the talking prescription technology. That can take up to two business days.┬аThen they can be picked up or delivered.
Because of that delay, Sleath considers the settlement only a “partial victory” тАФ and still discriminatory.
“If you have some sort of an infection or you’re in pain and you need the prescription right away, it’s not really inclusive. It’s not equitable,” he said.┬а
Following ASIC’s complaint, Walmart also made ScripTalk available on a “central fill” basis┬аin its B.C. pharmacies.
It’s not clear how much it costs to implement ScripTalk technology. The company says that’s proprietary information and won’t reveal what pharmacies pay.┬а
But┬аLepofsky says there’s no excuse for major chains not to offer talking prescriptions тАФ on demand, at the counter, in every pharmacy location.
He paints a picture with the situation reversed:┬а“If the pharmacist handed you a bottle with a label in braille, you’d say, ‘I can’t read this.┬аHow many pills do I take? What can I mix it with?'”
In Lepofsky’s opinion, not providing timely and accessible labels┬аis a┬а“glaring┬аviolation of human rights codes” across Canada.┬а
As the battle for wider accessibility continues, the 1.5 million Canadians тАФ┬аwho, according to the CNIB, experience sight loss тАФ┬аnow face a patchwork of pharmacies offering different access to talking prescriptions.┬а
Click here to search by postal code for pharmacies that offer ScripTalk.
Steacy, meanwhile, is┬аclear in his conviction that talking prescriptions should be available for those who need them, whenever and wherever they need them.
“To me, it’s a right of access. It’s a right to have independence. It’s a right to have security that everybody else gets. Why should I be left out?”
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